Dear AKU friends,

Call me mad, call me crazy - but I've just signed up for a 10k Military Run to raise funds for the AKU Society...

I'll be clambering over obstacles, delving into ditches, wading through water, sloshing through mud, pushing through undergrowth, and staggering up and down plenty of hills. Organised by British Military Fitness, it promises to be quite an experience...

Would you like to sponsor me? I've set up a fundraising page at http://www.justgiving.com/Nicolas-Sireau. It's a safe and easy way to donate straight to the AKU Society.

I'm raising funds for our study of how AKU affects children. Even though the visible symptoms (joint and heart disease, etc) appear only in adulthood, the underlying damage caused by AKU's Black Bone Disease may be starting much earlier. We need to find out when - is it age 5, age 10, age 15 or age 20? This will help us decide when to start treatment before it's too late. Thanks to the untiring work of AKU medical director Dr L Ranganath and his team, we'll be doing MRI scans of the joints, X-rays of the bones, echocardiograms of the heart, urine and blood tests and many other tests.

 

 

 

This is crucially important for our work. We need £19,000 in total, and we've already raised half that amount. That's why your support is so important. So come on, dig deep, I won't let you down!

Donate here: http://www.justgiving.com/Nicolas-Sireau.

And for those who think they're tough enough, why not join me and also raise funds for AKU? The run takes place on Saturday 26 March in Redhill, Surrey, south London. You can read about it, watch the videos and sign up here: http://www.bmfadventures.com/adventures/challenges-and-races/13/military-5k-and-10k-london.

All the best!

Nick

PS: send this round to all your friends and ask them to donate too. Thanks!

--
Dr Nicolas Sireau
Chairman

AKU Society

Citylife Social Enterprise Centre

182-190 Newmarket Road

Cambridge CB5 8HE, UK

www.alkaptonuria.info

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